11 Einträge gefunden

1. The multiple benefits of sport in haemophilia

   1. Farrugia, A
   2. Gringeri, A
   3. von Mackensen, S

   2018 - Forschungsinformationssystem des UKE
2. Haemophilia patients' unmet needs and their expectations of the new extended half-life factor concentrates

   1. von Mackensen, S
   2. Kalnins, W
   3. Krucker, J
   4. Weiss, J
   5. Miesbach, W
   6. Albisetti, M
   7. Pabinger, I

   2017 - Forschungsinformationssystem des UKE
3. Study of physical function in adolescents with haemophilia: The SO-FIT study

   1. Khair, K
   2. Holland, M
   3. Bladen, M
   4. Griffioen, A
   5. McLaughlin, P
   6. von Mackensen, S

   2017 - Forschungsinformationssystem des UKE
4. Measurement properties of the Haem-A-QoL in haemophilia clinical trials

   1. von Mackensen, S
   2. Eldar-Lissai, A
   3. Auguste, P
   4. Krishnan, S
   5. von Maltzahn, R
   6. Yu, R
   7. Wyrwich, K W

   2017 - Forschungsinformationssystem des UKE
5. Changes in health-related quality of life with treatment of longer-acting clotting factors: results in the A-LONG and B-LONG clinical studies

   1. Wyrwich, K W
   2. Krishnan, S
   3. Auguste, P
   4. Poon, J-L
   5. von Maltzahn, R
   6. Yu, R
   7. Pierce, G F

   2016 - Forschungsinformationssystem des UKE
6. The impact of social factors on outcomes in patients with bleeding disorders

   1. Holstein, K
   2. von Mackensen, S
   3. Bokemeyer, C
   4. Langer, F

   2016 - Forschungsinformationssystem des UKE
7. The impact of sport on health status, psychological well-being and physical performance of adults with haemophilia

   1. von Mackensen, S
   2. Harrington, C
   3. Tuddenham, E
   4. Littley, A
   5. Will, A
   6. Fareh, M
   7. Hay, C R M

   2016 - Forschungsinformationssystem des UKE
8. Validation of A New Hemophilia-Specific Burden Scale for Caregivers of Children With Hemophilia In The Us - The Hemophilia Associated Caregiver Burden Scale (Hemocabtm)

   1. von Mackensen, S
   2. Wisniewski, T
   3. Urgo, J
   4. Boggio, L

   2015 - Forschungsinformationssystem des UKE
9. Interpreting important health-related quality of life change using the Haem-A-QoL

   1. Wyrwich, K W
   2. Krishnan, S
   3. Poon, J L
   4. Auguste, P
   5. von Maltzahn, R
   6. Yu, R
   7. von Mackensen, S

   2015 - Forschungsinformationssystem des UKE
10. Quality of life of young patients with haemophilia in Europe, Lebensqualität von jungen Patienten mit Hämophilie in Europa

    1. Bullinger, Monika
    2. Gringeri, A
    3. von Mackensen, S

    2008 - Forschungsinformationssystem des UKE
11. Pilot testing of the 'Haemo-QoL' quality of life questionnaire for haemophiliac children in six European countries.

    1. Bullinger, M
    2. von Mackensen, S
    3. Fischer, K
    4. Khair, K
    5. Petersen, C
    6. Ravens-Sieberer, Ulrike
    7. Rocino, A

    2002 - Forschungsinformationssystem des UKE