44 Einträge gefunden

1. Growth hormone treatment in children with short stature : impact of the diagnosis on parents

   1. Witt, Stefanie
   2. Bloemeke, Janika
   3. Bullinger, Monika
   4. Dörr, Helmuth Günther
   5. Silva, Neuza
   6. Quitmann, Julia

   2024 - ReposIt
2. Factors of family impact in a Swedish-German cohort of children born with esophageal atresia

   1. Dellenmark-Blom, Michaela
   2. Abrahamsson, Kate
   3. Dingemann, Jens
   4. Witt, Stefanie
   5. Dingemann, Carmen
   6. Jönsson, Linus
   7. Gatzinsky, Vladimir

   2022 - ReposIt - frei zugänglich
3. Dual guidance structure for evaluation of patients with unclear diagnosis in centers for rare diseases (ZSE-DUO) : study protocol for a controlled multi-center cohort study

   1. Hebestreit, Helge
   2. Zeidler, Cornelia
   3. Schippers, Christopher
   4. de Zwaan, Martina
   5. Deckert, Jürgen
   6. Heuschmann, Peter
   7. Krauth, Christian

   2022 - ReposIt - frei zugänglich
4. Rare pediatric diseases and pathways to psychosocial care : a qualitative interview study with professional experts working with affected families in Germany

   1. Witt, Stefanie
   2. Kristensen, Kaja
   3. Wiegand-Grefe, Silke
   4. Boettcher, Johannes
   5. Blömeke, Janika
   6. Wingartz, Christina
   7. Bullinger, Monika

   2021 - ReposIt - frei zugänglich
5. Parent-child-agreement on health-related quality of life and its determinants in patients born with Esophageal Atresia : a Swedish-German cross-sectional study

   1. Witt, Stefanie
   2. Dellenmark-Blom, Michaela
   3. Kuckuck, Susanne
   4. Dingemann, Jens
   5. Abrahamsson, Kate
   6. Dingemann, Carmen
   7. Chaplin, John Eric

   2021 - ReposIt - frei zugänglich
6. Patient-reported outcomes : the value of observational assessments

   1. Witt, Stefanie
   2. Blömeke, Janika
   3. Bullinger, Monika
   4. Dingemann, Jens
   5. Dellenmark-Blom, Michaela
   6. Quitmann, Julia

   2021 - ReposIt
7. Health-related quality of life assessment in children and their families : aspects of importance to the pediatric surgeon

   1. Blömeke, Janika
   2. Witt, Stefanie
   3. Bullinger, Monika
   4. Dingemann, Jens
   5. Dellenmark-Blom, Michaela
   6. Quitmann, Julia

   2020 - ReposIt
8. Basic principles of health-related quality of life in parents and caregivers of pediatric surgical patients with rare congenital malformations : a scoping review

   1. Witt, Stefanie
   2. Blömeke, Janika
   3. Bullinger, Monika
   4. Dingemann, Jens
   5. Quitmann, Julia

   2020 - ReposIt
9. Quality of life of children with achondroplasia and their parents : a German cross-sectional study

   1. Witt, Stefanie
   2. Kolb, Beate
   3. Bloemeke, Janika
   4. Mohnike, Klaus
   5. Bullinger, Monika
   6. Quitmann, Julia

   2019 - ReposIt - frei zugänglich
10. Agreement between mothers', fathers', and children's' ratings on health-related quality of life in children born with esophageal atresia : a German cross-sectional study

    1. Witt, Stefanie
    2. Bloemeke, Janika
    3. Bullinger, Monika
    4. Dingemann, Jens
    5. Dellenmark-Blom, Michaela
    6. Quitmann, Julia

    2019 - ReposIt - frei zugänglich
11. Validation of the Greek version of the Quality of Life in Short Stature Youth (QoLISSY) questionnaire

    1. Drosatou, Chrysoula
    2. Vlachopapadopoulou, Elpis-Athina
    3. Bullinger, Monika
    4. Quitmann, Julia
    5. Silva, Neuza
    6. Salemi, Georgia
    7. Pavlopoulou, Ioanna

    2019 - ReposIt
12. Exploring the potential of a pretend play intervention in young patients with leukemia

    1. Witt, Stefanie
    2. Escherich, Gabriele
    3. Rutkowski, Stefan
    4. Kappelhoff, Gerhard
    5. Frygner-Holm, Sara
    6. Russ, Sandra
    7. Bullinger, Monika

    2019 - ReposIt
13. Health-related quality of life experiences in children and adolescents born with esophageal atresia : a Swedish-German focus group study

    1. Witt, Stefanie
    2. Dellenmark-Blom, Michaela
    3. Flieder, Sofie
    4. Dingemann, Jens
    5. Abrahamsson, Kate
    6. Jönsson, Linus
    7. Gatzinsky, Vladimir

    2018 - ReposIt
14. The psychometric evaluation of the quality of life in short stature youth (QoLISSY) instrument for German children born small for gestational age

    1. Sommer, Rachel
    2. Blömeke, Janika
    3. Bullinger, Monika
    4. Quitmann, Julia

    2018 - ReposIt
15. Quality of life in parents of children born with esophageal atresia

    1. Witt, Stefanie
    2. Dellenmark-Blom, Michaela
    3. Dingemann, Jens
    4. Dingemann, Carmen
    5. Ure, Benno M.
    6. Gomez, Barbara
    7. Bullinger, Monika

    2018 - ReposIt
16. Piloting and psychometric properties of a patient-reported outcome instrument for young people with achondroplasia based on the International Classification of Functioning Disability and Health : the Achondroplasia Personal Life Experience Scale (APLES)

    1. Bloemeke, Janika
    2. Sommer, Rachel
    3. Witt, Stefanie
    4. Dabs, Michaela
    5. Badia, Francisco Javier
    6. Bullinger, Monika
    7. Quitmann, Julia

    2018 - ReposIt
17. The esophageal-atresia-quality-of-life questionnaires : feasibility, validity and reliability in Sweden and Germany

    1. Dellenmark-Blom, Michaela
    2. Dingemann, Jens
    3. Witt, Stefanie
    4. Quitmann, Julia H.
    5. Jönsson, Linus
    6. Gatzinsky, Vladimir
    7. Chaplin, John Eric

    2018 - ReposIt
18. Validation of the Italian quality of life in Short Stature Youth (QoLISSY) questionnaire

    1. Quitmann, Julia
    2. Giammarco, A.
    3. Maghnie, Mohamad
    4. Napoli, Flavia
    5. Di Giovanni, Ilaria
    6. Carducci, Chiara
    7. Mohn, Angelika

    2017 - ReposIt
19. Understanding, assessing and improving health-related quality of life of young people with achondroplasia : a collaboration between a patient organization and academic medicine

    1. Witt, Stefanie
    2. Rohenkohl, Anja
    3. Bullinger, Monika
    4. Sommer, Rachel
    5. Kahrs, Sabine
    6. Klingebiel, Karl-Heinz
    7. Klingebiel, Ruzena

    2017 - ReposIt
20. Children's psychosocial functioning and parents' quality of life in paediatric short stature : the mediating role of caregiving stress

    1. Silva, Neuza
    2. Bullinger, Monika
    3. Sommer, Rachel
    4. Rohenkohl, Anja
    5. Witt, Stefanie
    6. Quitmann, Julia

    2017 - ReposIt