73 Einträge gefunden

1. Dual guidance structure for evaluation of patients with unclear diagnosis in centers for rare diseases (ZSE-DUO): study protocol for a controlled multi-center cohort study

   1. Hebestreit, Helge
   2. Zeidler, Cornelia
   3. Schippers, Christopher
   4. de Zwaan, Martina
   5. Deckert, Jürgen
   6. Heuschmann, Peter
   7. Krauth, Christian

   2022 - Forschungsinformationssystem des UKE - frei zugänglich
2. Parent-child-agreement on health-related quality of life and its determinants in patients born with Esophageal Atresia: a Swedish-German cross-sectional study

   1. Witt, Stefanie
   2. Dellenmark-Blom, Michaela
   3. Kuckuck, Susanne
   4. Dingemann, Jens
   5. Abrahamsson, Kate
   6. Dingemann, Carmen
   7. Chaplin, John Eric

   2021 - Forschungsinformationssystem des UKE - frei zugänglich
3. Rare pediatric diseases and pathways to psychosocial care: a qualitative interview study with professional experts working with affected families in Germany

   1. Witt, Stefanie
   2. Kristensen, Kaja
   3. Wiegand-Grefe, Silke
   4. Boettcher, Johannes
   5. Bloemeke, Janika
   6. Wingartz, Christina
   7. Bullinger, Monika

   2021 - Forschungsinformationssystem des UKE - frei zugänglich
4. Patient-Reported Outcomes-The Value of Observational Assessments

   1. Witt, Stefanie
   2. Bloemeke, Janika
   3. Bullinger, Monika
   4. Dingemann, Jens
   5. Dellenmark-Blom, Michaela
   6. Quitmann, Julia

   2021 - Forschungsinformationssystem des UKE
5. Comorbid depression in medical diseases

   1. Gold, Stefan M
   2. Köhler-Forsberg, Ole
   3. Moss-Morris, Rona
   4. Mehnert, Anja
   5. Miranda, J Jaime
   6. Bullinger, Monika
   7. Steptoe, Andrew

   2020 - Forschungsinformationssystem des UKE
6. Health-Related Quality of Life Assessment in Children and their Families:Aspects of Importance to the Pediatric Surgeon

   1. Bloemeke, Janika
   2. Witt, Stefanie
   3. Bullinger, Monika
   4. Dingemann, Jens
   5. Dellenmark-Blom, Michaela
   6. Quitmann, Julia

   2020 - Forschungsinformationssystem des UKE
7. Evaluation of two family-based intervention programs for children affected by rare disease and their families – research network (CARE-FAM-NET): study protocol for a rater-blinded, randomized, controlled, multicenter trial in a 2x2 factorial design

   1. Boettcher, Johannes
   2. Filter, Bonnie
   3. Denecke, Jonas
   4. Hot, Amra
   5. Daubmann, Anne
   6. Zapf, Antonia
   7. Wegscheider, Karl

   2020 - Forschungsinformationssystem des UKE
8. Clinical Factors Affecting Condition-Specific Quality-of-Life Domains in Pediatric Patients after Repair of Esophageal Atresia: The Swedish-German EA-QOL Study

   1. Dellenmark-Blom, Michaela
   2. Quitmann, Julia
   3. Dingemann, Jens
   4. Witt, Stefanie
   5. Ure, Benno M
   6. Bullinger, Monika
   7. Jönsson, Linus

   2020 - Forschungsinformationssystem des UKE
9. Basic Principles of Health-Related Quality of Life in Parents and Caregivers of Pediatric Surgical Patients with Rare Congenital Malformations-A Scoping Review

   1. Witt, Stefanie
   2. Blömeke, Janika
   3. Bullinger, Monika
   4. Dingemann, Jens
   5. Quitmann, Julia

   2020 - Forschungsinformationssystem des UKE
10. Cross-cultural selection and validation of instruments to assess patient-reported outcomes in children and adolescents with achondroplasia

    1. Bloemeke, Janika
    2. Sommer, Rachel
    3. Witt, Stefanie
    4. Bullinger, Monika
    5. Nordon, Clementine
    6. Badia, Francisco Javier
    7. González, Felipe Luna

    2019 - Forschungsinformationssystem des UKE
11. Do 8- to 18-year-old children/adolescents with chronic physical health conditions have worse health-related quality of life than their healthy peers? A meta-analysis of studies using the KIDSCREEN questionnaires

    1. Silva, Neuza
    2. Pereira, Marco
    3. Otto, Christiane
    4. Ravens-Sieberer, Ulrike
    5. Canavarro, Maria Cristina
    6. Bullinger, Monika

    2019 - Forschungsinformationssystem des UKE
12. A DELPHI study on aspects of study design to overcome knowledge gaps on the burden of disease caused by serogroup B invasive meningococcal disease

    1. Marten, Ole
    2. Koerber, Florian
    3. Bloom, David
    4. Bullinger, Monika
    5. Buysse, Corinne
    6. Christensen, Hannah
    7. De Wals, Philippe

    2019 - Forschungsinformationssystem des UKE - frei zugänglich
13. Generic Health-Related Quality of Life after Repair of Esophageal Atresia and Its Determinants within a German-Swedish Cohort

    1. Flieder, Sofie
    2. Dellenmark-Blom, Michaela
    3. Witt, Stefanie
    4. Dingemann, Carmen
    5. Quitmann, Julia H
    6. Jönsson, Linus
    7. Gatzinsky, Vladimir

    2019 - Forschungsinformationssystem des UKE
14. Agreement between mothers', fathers', and children's' ratings on health-related quality of life in children born with esophageal atresia - a German cross-sectional study

    1. Witt, Stefanie
    2. Bloemeke, Janika
    3. Bullinger, Monika
    4. Dingemann, Jens
    5. Dellenmark-Blom, Michaela
    6. Quitmann, Julia

    2019 - Forschungsinformationssystem des UKE - frei zugänglich
15. Psychometric performance of the Quality of Life in Short Stature Youth (QoLISSY) questionnaire in a randomized open-label comparator trial in idiopathic short stature

    1. Bloemeke, Janika
    2. Balacano Valdez, Richelle
    3. Mauras, Nelly
    4. Mericq, Veronica
    5. Ross, Judith
    6. Permuy, Joseph
    7. Quitmann, Julia

    2019 - Forschungsinformationssystem des UKE
16. Subjective integration and quality of life of Sub-Saharan African migrants in Germany

    1. Adedeji, A
    2. Bullinger, Monika

    2019 - Forschungsinformationssystem des UKE
17. Validation of the Greek version of the Quality of Life in Short Stature Youth (QoLISSY) questionnaire

    1. Antonios Drosatou, Chrysoula
    2. Vlachopapadopoulou , Elpis-Athina
    3. Bullinger, Monika
    4. Quitmann, Julia Hannah
    5. Silva, Neuza
    6. Salemi, Giorgia
    7. Pavlopoulou, Ioanna

    2019 - Forschungsinformationssystem des UKE
18. Quality of life of children with achondroplasia and their parents - a German cross-sectional study

    1. Witt, Stefanie
    2. Kolb, Beate
    3. Bloemeke, Janika
    4. Mohnike, Klaus
    5. Bullinger, Monika
    6. Quitmann, Julia

    2019 - Forschungsinformationssystem des UKE - frei zugänglich
19. Quality of Life of Short-Statured Children Born Small for Gestational Age or Idiopathic Growth Hormone Deficiency Within 1 Year of Growth Hormone Treatment

    1. Quitmann, Julia Hannah
    2. Bloemeke, Janika
    3. Silva, Neuza
    4. Bullinger, Monika
    5. Witt, Stefanie
    6. Akkurt, Ilker
    7. Dunstheimer, Desiree

    2019 - Forschungsinformationssystem des UKE - frei zugänglich
20. Psychometric properties of the quality of life in short statured youth (QoLISSY) questionnaire within the course of growth hormone treatment

    1. Bloemeke, Janika
    2. Silva, Neuza
    3. Bullinger, Monika
    4. Witt, Stefanie
    5. Dörr, Helmuth-Günther
    6. Quitmann, Julia

    2019 - Forschungsinformationssystem des UKE - frei zugänglich