64 Einträge gefunden

1. Growth hormone treatment in children with short stature : impact of the diagnosis on parents

   1. Witt, Stefanie
   2. Bloemeke, Janika
   3. Bullinger, Monika
   4. Dörr, Helmuth Günther
   5. Silva, Neuza
   6. Quitmann, Julia

   2024 - ReposIt
2. Lebensqualität von kleinwüchsigen Kindern und Jugendlichen und Wachstumshormontherapie, Quality of life of short-statured children and adolescents and growth hormone treatment

   1. Quitmann, Julia Hannah
   2. Binder, Gerhard
   3. Witt, Stefanie
   4. Bullinger, Monika
   5. Blömeke, Janika
   6. Fricke-Otto, Susanne
   7. Hauffa, Berthold

   2023 - ReposIt - frei zugänglich
3. Dual guidance structure for evaluation of patients with unclear diagnosis in centers for rare diseases (ZSE-DUO) : study protocol for a controlled multi-center cohort study

   1. Hebestreit, Helge
   2. Zeidler, Cornelia
   3. Schippers, Christopher
   4. de Zwaan, Martina
   5. Deckert, Jürgen
   6. Heuschmann, Peter
   7. Krauth, Christian

   2022 - ReposIt - frei zugänglich
4. Factors of family impact in a Swedish-German cohort of children born with esophageal atresia

   1. Dellenmark-Blom, Michaela
   2. Abrahamsson, Kate
   3. Dingemann, Jens
   4. Witt, Stefanie
   5. Dingemann, Carmen
   6. Jönsson, Linus
   7. Gatzinsky, Vladimir

   2022 - ReposIt - frei zugänglich
5. Lebensqualität und erlebte Belastungen von Patient*innen mit Verdacht auf eine Seltene Erkrankung : erste Erkenntnisse aus der ZSE-DUO Studie

   1. Witt, Stefanie
   2. Kristensen, Kaja
   3. Blömeke, Janika
   4. Hebestreit, Helge
   5. Wocker, Maximilian
   6. Pfister, Lisa
   7. Bullinger, Monika

   2022 - ReposIt
6. Rare pediatric diseases and pathways to psychosocial care : a qualitative interview study with professional experts working with affected families in Germany

   1. Witt, Stefanie
   2. Kristensen, Kaja
   3. Wiegand-Grefe, Silke
   4. Boettcher, Johannes
   5. Blömeke, Janika
   6. Wingartz, Christina
   7. Bullinger, Monika

   2021 - ReposIt - frei zugänglich
7. Parent-child-agreement on health-related quality of life and its determinants in patients born with Esophageal Atresia : a Swedish-German cross-sectional study

   1. Witt, Stefanie
   2. Dellenmark-Blom, Michaela
   3. Kuckuck, Susanne
   4. Dingemann, Jens
   5. Abrahamsson, Kate
   6. Dingemann, Carmen
   7. Chaplin, John Eric

   2021 - ReposIt - frei zugänglich
8. Patient-reported outcomes : the value of observational assessments

   1. Witt, Stefanie
   2. Blömeke, Janika
   3. Bullinger, Monika
   4. Dingemann, Jens
   5. Dellenmark-Blom, Michaela
   6. Quitmann, Julia

   2021 - ReposIt
9. Health-related quality of life assessment in children and their families : aspects of importance to the pediatric surgeon

   1. Blömeke, Janika
   2. Witt, Stefanie
   3. Bullinger, Monika
   4. Dingemann, Jens
   5. Dellenmark-Blom, Michaela
   6. Quitmann, Julia

   2020 - ReposIt
10. Basic principles of health-related quality of life in parents and caregivers of pediatric surgical patients with rare congenital malformations : a scoping review

    1. Witt, Stefanie
    2. Blömeke, Janika
    3. Bullinger, Monika
    4. Dingemann, Jens
    5. Quitmann, Julia

    2020 - ReposIt
11. Exploring the potential of a pretend play intervention in young patients with leukemia

    1. Witt, Stefanie
    2. Escherich, Gabriele
    3. Rutkowski, Stefan
    4. Kappelhoff, Gerhard
    5. Frygner-Holm, Sara
    6. Russ, Sandra
    7. Bullinger, Monika

    2019 - ReposIt
12. Quality of life of children with achondroplasia and their parents : a German cross-sectional study

    1. Witt, Stefanie
    2. Kolb, Beate
    3. Bloemeke, Janika
    4. Mohnike, Klaus
    5. Bullinger, Monika
    6. Quitmann, Julia

    2019 - ReposIt - frei zugänglich
13. Agreement between mothers', fathers', and children's' ratings on health-related quality of life in children born with esophageal atresia : a German cross-sectional study

    1. Witt, Stefanie
    2. Bloemeke, Janika
    3. Bullinger, Monika
    4. Dingemann, Jens
    5. Dellenmark-Blom, Michaela
    6. Quitmann, Julia

    2019 - ReposIt - frei zugänglich
14. Validation of the Greek version of the Quality of Life in Short Stature Youth (QoLISSY) questionnaire

    1. Drosatou, Chrysoula
    2. Vlachopapadopoulou, Elpis-Athina
    3. Bullinger, Monika
    4. Quitmann, Julia
    5. Silva, Neuza
    6. Salemi, Georgia
    7. Pavlopoulou, Ioanna

    2019 - ReposIt
15. The esophageal-atresia-quality-of-life questionnaires : feasibility, validity and reliability in Sweden and Germany

    1. Dellenmark-Blom, Michaela
    2. Dingemann, Jens
    3. Witt, Stefanie
    4. Quitmann, Julia H.
    5. Jönsson, Linus
    6. Gatzinsky, Vladimir
    7. Chaplin, John Eric

    2018 - ReposIt
16. Piloting and psychometric properties of a patient-reported outcome instrument for young people with achondroplasia based on the International Classification of Functioning Disability and Health : the Achondroplasia Personal Life Experience Scale (APLES)

    1. Bloemeke, Janika
    2. Sommer, Rachel
    3. Witt, Stefanie
    4. Dabs, Michaela
    5. Badia, Francisco Javier
    6. Bullinger, Monika
    7. Quitmann, Julia

    2018 - ReposIt
17. Emotionsregulation, psychische Auffälligkeiten und Lebensqualität von Kindern mit endokrinem Kleinwuchs

    1. Witt, Stefanie
    2. Bullinger, Monika
    3. Quitmann, Julia

    2018 - ReposIt
18. Quality of life in parents of children born with esophageal atresia

    1. Witt, Stefanie
    2. Dellenmark-Blom, Michaela
    3. Dingemann, Jens
    4. Dingemann, Carmen
    5. Ure, Benno M.
    6. Gomez, Barbara
    7. Bullinger, Monika

    2018 - ReposIt
19. Health-related quality of life experiences in children and adolescents born with esophageal atresia : a Swedish-German focus group study

    1. Witt, Stefanie
    2. Dellenmark-Blom, Michaela
    3. Flieder, Sofie
    4. Dingemann, Jens
    5. Abrahamsson, Kate
    6. Jönsson, Linus
    7. Gatzinsky, Vladimir

    2018 - ReposIt
20. The psychometric evaluation of the quality of life in short stature youth (QoLISSY) instrument for German children born small for gestational age

    1. Sommer, Rachel
    2. Blömeke, Janika
    3. Bullinger, Monika
    4. Quitmann, Julia

    2018 - ReposIt