165 Einträge gefunden

1. Quality of life and mental health in children and adolescents during the first year of the COVID-19 pandemic: results of a two-wave nationwide population-based study

   1. Ravens-Sieberer, Ulrike
   2. Kaman, Anne
   3. Erhart, Michael
   4. Otto, Christiane
   5. Devine, Janine
   6. Löffler, Constanze
   7. Hurrelmann, Klaus

   2023 - Forschungsinformationssystem des UKE - frei zugänglich
2. Factors of family impact in a Swedish-German cohort of children born with esophageal atresia

   1. Dellenmark-Blom, Michaela
   2. Abrahamsson, Kate
   3. Dingemann, Jens
   4. Witt, Stefanie
   5. Dingemann, Carmen
   6. Jönsson, Linus
   7. Gatzinsky, Vladimir

   2022 - Forschungsinformationssystem des UKE - frei zugänglich
3. Dual guidance structure for evaluation of patients with unclear diagnosis in centers for rare diseases (ZSE-DUO): study protocol for a controlled multi-center cohort study

   1. Hebestreit, Helge
   2. Zeidler, Cornelia
   3. Schippers, Christopher
   4. de Zwaan, Martina
   5. Deckert, Jürgen
   6. Heuschmann, Peter
   7. Krauth, Christian

   2022 - Forschungsinformationssystem des UKE - frei zugänglich
4. Evidence of validity of internal structure of the Functional Assessment of Chronic Illness Therapy-Spiritual Well-Being Scale (FACIT-Sp-12) in Brazilian adolescents with chronic health conditions

   1. Alvarenga, Willyane de Andrade
   2. Nascimento, Lucila Castanheira
   3. Rebustini, Flávio
   4. Dos Santos, Claudia Benedita
   5. Muehlan, Holger
   6. Schmidt, Silke
   7. Bullinger, Monika

   2022 - Forschungsinformationssystem des UKE - frei zugänglich
5. Quality of Life of Children and Adolescents with Short Stature: The Twofold Contribution of Physical Growth and Adaptive Height-Related Cognitive Beliefs

   1. Mergulhão, Beatriz
   2. Almeida, José Paulo
   3. Moreira, Helena
   4. Castro-Correia, Cíntia
   5. Bullinger, Monika
   6. Canavarro, Maria Cristina
   7. Silva, Neuza

   2022 - Forschungsinformationssystem des UKE
6. Rare pediatric diseases and pathways to psychosocial care: a qualitative interview study with professional experts working with affected families in Germany

   1. Witt, Stefanie
   2. Kristensen, Kaja
   3. Wiegand-Grefe, Silke
   4. Boettcher, Johannes
   5. Bloemeke, Janika
   6. Wingartz, Christina
   7. Bullinger, Monika

   2021 - Forschungsinformationssystem des UKE - frei zugänglich
7. Parent-child-agreement on health-related quality of life and its determinants in patients born with Esophageal Atresia: a Swedish-German cross-sectional study

   1. Witt, Stefanie
   2. Dellenmark-Blom, Michaela
   3. Kuckuck, Susanne
   4. Dingemann, Jens
   5. Abrahamsson, Kate
   6. Dingemann, Carmen
   7. Chaplin, John Eric

   2021 - Forschungsinformationssystem des UKE - frei zugänglich
8. Patient-Reported Outcomes-The Value of Observational Assessments

   1. Witt, Stefanie
   2. Bloemeke, Janika
   3. Bullinger, Monika
   4. Dingemann, Jens
   5. Dellenmark-Blom, Michaela
   6. Quitmann, Julia

   2021 - Forschungsinformationssystem des UKE
9. Basic Principles of Health-Related Quality of Life in Parents and Caregivers of Pediatric Surgical Patients with Rare Congenital Malformations-A Scoping Review

   1. Witt, Stefanie
   2. Blömeke, Janika
   3. Bullinger, Monika
   4. Dingemann, Jens
   5. Quitmann, Julia

   2020 - Forschungsinformationssystem des UKE
10. Health-Related Quality of Life Assessment in Children and their Families:Aspects of Importance to the Pediatric Surgeon

    1. Bloemeke, Janika
    2. Witt, Stefanie
    3. Bullinger, Monika
    4. Dingemann, Jens
    5. Dellenmark-Blom, Michaela
    6. Quitmann, Julia

    2020 - Forschungsinformationssystem des UKE
11. Clinical Factors Affecting Condition-Specific Quality-of-Life Domains in Pediatric Patients after Repair of Esophageal Atresia: The Swedish-German EA-QOL Study

    1. Dellenmark-Blom, Michaela
    2. Quitmann, Julia
    3. Dingemann, Jens
    4. Witt, Stefanie
    5. Ure, Benno M
    6. Bullinger, Monika
    7. Jönsson, Linus

    2020 - Forschungsinformationssystem des UKE
12. Comorbid depression in medical diseases

    1. Gold, Stefan M
    2. Köhler-Forsberg, Ole
    3. Moss-Morris, Rona
    4. Mehnert, Anja
    5. Miranda, J Jaime
    6. Bullinger, Monika
    7. Steptoe, Andrew

    2020 - Forschungsinformationssystem des UKE
13. Evaluation of two family-based intervention programs for children affected by rare disease and their families – research network (CARE-FAM-NET): study protocol for a rater-blinded, randomized, controlled, multicenter trial in a 2x2 factorial design

    1. Boettcher, Johannes
    2. Filter, Bonnie
    3. Denecke, Jonas
    4. Hot, Amra
    5. Daubmann, Anne
    6. Zapf, Antonia
    7. Wegscheider, Karl

    2020 - Forschungsinformationssystem des UKE
14. Psychometric properties of the quality of life in short statured youth (QoLISSY) questionnaire within the course of growth hormone treatment

    1. Bloemeke, Janika
    2. Silva, Neuza
    3. Bullinger, Monika
    4. Witt, Stefanie
    5. Dörr, Helmuth-Günther
    6. Quitmann, Julia

    2019 - Forschungsinformationssystem des UKE - frei zugänglich
15. Measuring Spiritual Well-Being in Brazilian Adolescents with Chronic Illness Using the FACIT-Sp-12: Age Adaptation of the Self-Report Version, Development of the Parental-Report Version, and Validation

    1. de Alvarenga, Willyane Andrade
    2. Nascimento, Lucila Castanheira
    3. Dos Santos, Claudia Benedita
    4. Leite, Ana Carolina Andrade Biaggi
    5. Mühlan, Holger
    6. Schmidt, Silke
    7. Bullinger, Monika

    2019 - Forschungsinformationssystem des UKE
16. Agreement between mothers', fathers', and children's' ratings on health-related quality of life in children born with esophageal atresia - a German cross-sectional study

    1. Witt, Stefanie
    2. Bloemeke, Janika
    3. Bullinger, Monika
    4. Dingemann, Jens
    5. Dellenmark-Blom, Michaela
    6. Quitmann, Julia

    2019 - Forschungsinformationssystem des UKE - frei zugänglich
17. Quality of life as a target criterion in schizophrenia therapy, Lebensqualität als Zielkriterium in der Schizophrenietherapie

    1. Bullinger, Monika
    2. Kuhn, Jens
    3. Leopold, Karolina
    4. Janetzky, Wolfgang
    5. Wietfeld, Rita

    2019 - Forschungsinformationssystem des UKE - frei zugänglich
18. Quality of life of children with achondroplasia and their parents - a German cross-sectional study

    1. Witt, Stefanie
    2. Kolb, Beate
    3. Bloemeke, Janika
    4. Mohnike, Klaus
    5. Bullinger, Monika
    6. Quitmann, Julia

    2019 - Forschungsinformationssystem des UKE - frei zugänglich
19. Piloting and psychometric properties of a patient-reported outcome instrument for young people with achondroplasia based on the International Classification of Functioning Disability and Health: the Achondroplasia Personal Life Experience Scale (APLES)

    1. Bloemeke, Janika
    2. Sommer, Rachel
    3. Witt, Stefanie
    4. Dabs, Michaela
    5. Badia, Francisco Javier
    6. Bullinger, Monika
    7. Quitmann, Julia

    2019 - Forschungsinformationssystem des UKE
20. Subjective integration and quality of life of Sub-Saharan African migrants in Germany

    1. Adedeji, A
    2. Bullinger, Monika

    2019 - Forschungsinformationssystem des UKE