3 Einträge gefunden

1. Health-Related Quality of Life and mental health of families with children and adolescents affected by rare diseases and high disease burden: the perspective of affected children and their siblings

   1. Wiegand-Grefe, Silke
   2. Liedtke, Anna
   3. Morgenstern, Lydia
   4. Hoff, Antonia
   5. Csengoe-Norris, Anikó
   6. Johannsen, Jessika
   7. Denecke, Jonas

   2022 - Forschungsinformationssystem des UKE - frei zugänglich
2. Evaluation of putative CSF biomarkers in paediatric spinal muscular atrophy (SMA) patients before and during treatment with nusinersen

   1. Johannsen, Jessika
   2. Weiss, Deike
   3. Daubmann, Anne
   4. Schmitz, Leonie
   5. Denecke, Jonas

   2021 - Forschungsinformationssystem des UKE - frei zugänglich
3. Evaluation of two family-based intervention programs for children affected by rare disease and their families – research network (CARE-FAM-NET): study protocol for a rater-blinded, randomized, controlled, multicenter trial in a 2x2 factorial design

   1. Boettcher, Johannes
   2. Filter, Bonnie
   3. Denecke, Jonas
   4. Hot, Amra
   5. Daubmann, Anne
   6. Zapf, Antonia
   7. Wegscheider, Karl

   2020 - Forschungsinformationssystem des UKE