4 Einträge gefunden

1. Evaluation of two family-based intervention programs for children affected by rare disease and their families – research network (CARE-FAM-NET): study protocol for a rater-blinded, randomized, controlled, multicenter trial in a 2x2 factorial design

   1. Boettcher, Johannes
   2. Filter, Bonnie
   3. Denecke, Jonas
   4. Hot, Amra
   5. Daubmann, Anne
   6. Zapf, Antonia
   7. Wegscheider, Karl

   2020 - Forschungsinformationssystem des UKE
2. The impact of long-term ventilator-use on health-related quality of life and the mental health of children with neuromuscular diseases and their families: need for a revised perspective?

   1. Johannsen, Jessika
   2. Fuhrmann, Lena
   3. Grolle, Benjamin
   4. Morgenstern, Lydia
   5. Wiegand-Grefe, Silke
   6. Denecke, Jonas

   2020 - Forschungsinformationssystem des UKE
3. Quality of Life and Mental Health in Mothers and Fathers Caring for Children and Adolescents with Rare Diseases Requiring Long-Term Mechanical Ventilation

   1. Boettcher, Johannes
   2. Denecke, Jonas
   3. Barkmann, Claus
   4. Wiegand-Grefe, Silke

   2020 - Forschungsinformationssystem des UKE
4. The Clinical Picture of a Bilateral Perisylvian Syndrome as the Initial Symptom of Mega-Corpus-Callosum Syndrome due to a MAST1-Gene Mutation

   1. Hecher, Laura
   2. Johannsen, Jessika
   3. Bierhals, Tatjana
   4. Buhk, Jan-Hendrik
   5. Hempel, Maja
   6. Denecke, Jonas

   2020 - Forschungsinformationssystem des UKE