10 Einträge gefunden

1. Piloting and psychometric properties of a patient-reported outcome instrument for young people with achondroplasia based on the International Classification of Functioning Disability and Health: the Achondroplasia Personal Life Experience Scale (APLES)

   1. Bloemeke, Janika
   2. Sommer, Rachel
   3. Witt, Stefanie
   4. Dabs, Michaela
   5. Badia, Francisco Javier
   6. Bullinger, Monika
   7. Quitmann, Julia

   2019 - Forschungsinformationssystem des UKE
2. Children's psychosocial functioning and parents' quality of life in paediatric short stature: The mediating role of caregiving stress

   1. Silva, Neuza
   2. Bullinger, Monika
   3. Sommer, Rachel
   4. Rohenkohl, Anja
   5. Witt, Stefanie
   6. Quitmann, Julia

   2018 - Forschungsinformationssystem des UKE
3. Experiencing health-related quality of life in paediatric short stature - a cross-cultural analysis of statements from patients and parents

   1. Sommer, Rachel
   2. Bullinger, Monika
   3. Chaplin, John
   4. Do, Ju-Ky
   5. Power, Mick
   6. Pleil, Andreas
   7. Quitmann, Julia

   2017 - Forschungsinformationssystem des UKE
4. An ICF-CY-based approach to assessing self- and observer-reported functioning in young persons with achondroplasia - development of the pilot version of the Achondroplasia Personal Life Experience Scale (APLES)

   1. Sommer, Rachel
   2. Blömeke, Janika
   3. Dabs, Michaela
   4. Witt, Stefanie
   5. Bullinger, Monika
   6. Quitmann, Julia

   2017 - Forschungsinformationssystem des UKE
5. Understanding, Assessing and Improving Health-Related Quality of Life of Young People with Achondroplasia- A Collaboration between a Patient Organization and Academic Medicine

   1. Witt, Stefanie
   2. Rohenkohl, Anja
   3. Bullinger, Monika
   4. Sommer, Rachel
   5. Kahrs, Sabine
   6. Klingebiel, Karl-Heinz
   7. Klingebiel, Ruzena

   2017 - Forschungsinformationssystem des UKE
6. Living with Intoxication-Type Inborn Errors of Metabolism: A Qualitative Analysis of Interviews with Paediatric Patients and Their Parents

   1. Zeltner, Nina A
   2. Landolt, Markus A
   3. Baumgartner, Matthias R
   4. Lageder, Sarah
   5. Quitmann, Julia
   6. Sommer, Rachel
   7. Karall, Daniela

   2017 - Forschungsinformationssystem des UKE - frei zugänglich
7. Explaining parent-child (dis)agreement in generic and short stature-specific health-related quality of life reports: do family and social relationships matter?

   1. Quitmann, Julia
   2. Rohenkohl, Anja
   3. Sommer, Rachel
   4. Bullinger, Monika
   5. Silva, Neuza

   2016 - Forschungsinformationssystem des UKE - frei zugänglich
8. Understanding the impact of statural height on health-related quality of life in German adolescents: a population-based analysis

   1. Sommer, Rachel
   2. Daubmann, Anne
   3. Quitmann, Julia
   4. Ravens-Sieberer, Ulrike
   5. Bullinger-Naber, Monika

   2015 - Forschungsinformationssystem des UKE
9. Evaluation of the American-English Quality of Life in Short Stature Youth (QoLISSY) questionnaire in the United States

   1. Bullinger, Monika
   2. Sommer, Rachel
   3. Pleil, Andreas
   4. Mauras, Nelly
   5. Ross, Judith
   6. Newfield, Ron
   7. Silverman, Lawrence

   2015 - Forschungsinformationssystem des UKE - frei zugänglich
10. Linking a short-stature specific health-related quality of life measure (QoLISSY) to the International Classification of Functioning - Children and Youth (ICF-CY)

    1. Sommer, Rachel
    2. Bullinger-Naber, Monika
    3. Rohenkohl, Anja
    4. Quitmann, Julia
    5. Brütt, Anna Levke

    2015 - Forschungsinformationssystem des UKE