Facetten
Zugriff
Einrichtung
Medientyp
- Text 75
Karte
Erscheinungsjahr
Autor/in
- Bullinger, Monika
- Witt, Stefanie 19
- Quitmann, Julia 16
- Ravens-Sieberer, Ulrike 15
- Bloemeke, Janika 10
- alle zeigen
Sprache
75 Einträge gefunden
-
Quality of life and mental health in children and adolescents during the first year of the COVID-19 pandemic: results of a two-wave nationwide population-based study
- Ravens-Sieberer, Ulrike
- Kaman, Anne
- Erhart, Michael
- Otto, Christiane
- Devine, Janine
- Löffler, Constanze
- Hurrelmann, Klaus
-
Evidence of validity of internal structure of the Functional Assessment of Chronic Illness Therapy-Spiritual Well-Being Scale (FACIT-Sp-12) in Brazilian adolescents with chronic health conditions
- Alvarenga, Willyane de Andrade
- Nascimento, Lucila Castanheira
- Rebustini, Flávio
- Dos Santos, Claudia Benedita
- Muehlan, Holger
- Schmidt, Silke
- Bullinger, Monika
-
Dual guidance structure for evaluation of patients with unclear diagnosis in centers for rare diseases (ZSE-DUO): study protocol for a controlled multi-center cohort study
- Hebestreit, Helge
- Zeidler, Cornelia
- Schippers, Christopher
- de Zwaan, Martina
- Deckert, Jürgen
- Heuschmann, Peter
- Krauth, Christian
-
Factors of family impact in a Swedish-German cohort of children born with esophageal atresia
- Dellenmark-Blom, Michaela
- Abrahamsson, Kate
- Dingemann, Jens
- Witt, Stefanie
- Dingemann, Carmen
- Jönsson, Linus
- Gatzinsky, Vladimir
-
Quality of Life of Children and Adolescents with Short Stature: The Twofold Contribution of Physical Growth and Adaptive Height-Related Cognitive Beliefs
- Mergulhão, Beatriz
- Almeida, José Paulo
- Moreira, Helena
- Castro-Correia, Cíntia
- Bullinger, Monika
- Canavarro, Maria Cristina
- Silva, Neuza
-
Parent-child-agreement on health-related quality of life and its determinants in patients born with Esophageal Atresia: a Swedish-German cross-sectional study
- Witt, Stefanie
- Dellenmark-Blom, Michaela
- Kuckuck, Susanne
- Dingemann, Jens
- Abrahamsson, Kate
- Dingemann, Carmen
- Chaplin, John Eric
-
Rare pediatric diseases and pathways to psychosocial care: a qualitative interview study with professional experts working with affected families in Germany
- Witt, Stefanie
- Kristensen, Kaja
- Wiegand-Grefe, Silke
- Boettcher, Johannes
- Bloemeke, Janika
- Wingartz, Christina
- Bullinger, Monika
-
Patient-Reported Outcomes-The Value of Observational Assessments
- Witt, Stefanie
- Bloemeke, Janika
- Bullinger, Monika
- Dingemann, Jens
- Dellenmark-Blom, Michaela
- Quitmann, Julia
-
-
-
Comorbid depression in medical diseases
- Gold, Stefan M
- Köhler-Forsberg, Ole
- Moss-Morris, Rona
- Mehnert, Anja
- Miranda, J Jaime
- Bullinger, Monika
- Steptoe, Andrew
-
Evaluation of two family-based intervention programs for children affected by rare disease and their families – research network (CARE-FAM-NET): study protocol for a rater-blinded, randomized, controlled, multicenter trial in a 2x2 factorial design
- Boettcher, Johannes
- Filter, Bonnie
- Denecke, Jonas
- Hot, Amra
- Daubmann, Anne
- Zapf, Antonia
- Wegscheider, Karl
-
Clinical Factors Affecting Condition-Specific Quality-of-Life Domains in Pediatric Patients after Repair of Esophageal Atresia: The Swedish-German EA-QOL Study
- Dellenmark-Blom, Michaela
- Quitmann, Julia
- Dingemann, Jens
- Witt, Stefanie
- Ure, Benno M
- Bullinger, Monika
- Jönsson, Linus
-
Health-related quality of life experiences in children and adolescents born with esophageal atresia: A Swedish-German focus group study
- Witt, Stefanie
- Dellenmark-Blom, Michaela
- Flieder, Sofie
- Dingemann, Jens
- Abrahamsson, Kate
- Jönsson, Linus
- Gatzinsky, Vladimir
-
-
Cross-cultural selection and validation of instruments to assess patient-reported outcomes in children and adolescents with achondroplasia
- Bloemeke, Janika
- Sommer, Rachel
- Witt, Stefanie
- Bullinger, Monika
- Nordon, Clementine
- Badia, Francisco Javier
- González, Felipe Luna
-
Piloting and psychometric properties of a patient-reported outcome instrument for young people with achondroplasia based on the International Classification of Functioning Disability and Health: the Achondroplasia Personal Life Experience Scale (APLES)
- Bloemeke, Janika
- Sommer, Rachel
- Witt, Stefanie
- Dabs, Michaela
- Badia, Francisco Javier
- Bullinger, Monika
- Quitmann, Julia
-
Psychometric performance of the Quality of Life in Short Stature Youth (QoLISSY) questionnaire in a randomized open-label comparator trial in idiopathic short stature
- Bloemeke, Janika
- Balacano Valdez, Richelle
- Mauras, Nelly
- Mericq, Veronica
- Ross, Judith
- Permuy, Joseph
- Quitmann, Julia
-
-
Measuring Spiritual Well-Being in Brazilian Adolescents with Chronic Illness Using the FACIT-Sp-12: Age Adaptation of the Self-Report Version, Development of the Parental-Report Version, and Validation
- de Alvarenga, Willyane Andrade
- Nascimento, Lucila Castanheira
- Dos Santos, Claudia Benedita
- Leite, Ana Carolina Andrade Biaggi
- Mühlan, Holger
- Schmidt, Silke
- Bullinger, Monika