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Evaluation of two family-based intervention programs for children affected by rare disease and their families – research network (CARE-FAM-NET): study protocol for a rater-blinded, randomized, controlled, multicenter trial in a 2x2 factorial design
- Boettcher, Johannes
- Filter, Bonnie
- Denecke, Jonas
- Hot, Amra
- Daubmann, Anne
- Zapf, Antonia
- Wegscheider, Karl