13 Einträge gefunden

1. Piloting and psychometric properties of a patient-reported outcome instrument for young people with achondroplasia based on the International Classification of Functioning Disability and Health : the Achondroplasia Personal Life Experience Scale (APLES)

   1. Bloemeke, Janika
   2. Sommer, Rachel
   3. Witt, Stefanie
   4. Dabs, Michaela
   5. Badia, Francisco Javier
   6. Bullinger, Monika
   7. Quitmann, Julia

   2018 - ReposIt
2. The psychometric evaluation of the quality of life in short stature youth (QoLISSY) instrument for German children born small for gestational age

   1. Sommer, Rachel
   2. Blömeke, Janika
   3. Bullinger, Monika
   4. Quitmann, Julia

   2018 - ReposIt
3. Understanding, assessing and improving health-related quality of life of young people with achondroplasia : a collaboration between a patient organization and academic medicine

   1. Witt, Stefanie
   2. Rohenkohl, Anja
   3. Bullinger, Monika
   4. Sommer, Rachel
   5. Kahrs, Sabine
   6. Klingebiel, Karl-Heinz
   7. Klingebiel, Ruzena

   2017 - ReposIt
4. Development and pilot-testing of a condition-specific instrument to assess the quality-of-life in children and adolescents born with esophageal atresia

   1. Dellenmark-Blom, Michaela
   2. Abrahamsson, Kate
   3. Quitmann, Julia H.
   4. Sommer, Rachel
   5. Witt, Stefanie
   6. Dingemann, Jens
   7. Flieder, Sofie

   2017 - ReposIt
5. Validation of the Italian quality of life in Short Stature Youth (QoLISSY) questionnaire

   1. Quitmann, Julia
   2. Giammarco, A.
   3. Maghnie, Mohamad
   4. Napoli, Flavia
   5. Di Giovanni, Ilaria
   6. Carducci, Chiara
   7. Mohn, Angelika

   2017 - ReposIt
6. Children's psychosocial functioning and parents' quality of life in paediatric short stature : the mediating role of caregiving stress

   1. Silva, Neuza
   2. Bullinger, Monika
   3. Sommer, Rachel
   4. Rohenkohl, Anja
   5. Witt, Stefanie
   6. Quitmann, Julia

   2017 - ReposIt
7. An ICF-CY-based approach to assessing self- and observer-reported functioning in young persons with achondroplasia : development of the pilot version of the Achondroplasia Personal Life Experience Scale (APLES)

   1. Sommer, Rachel
   2. Blömeke, Janika
   3. Dabs, Michaela
   4. Witt, Stefanie
   5. Bullinger, Monika
   6. Quitmann, Julia

   2016 - ReposIt
8. Living with intoxication-type inborn errors of metabolism : a qualitative analysis of interviews with paediatric patients and their parents

   1. Zeltner, Nina A.
   2. Landolt, Markus A.
   3. Baumgartner, Matthias R.
   4. Lageder, Sarah
   5. Quitmann, Julia
   6. Sommer, Rachel
   7. Karall, Daniela

   2016 - ReposIt
9. Explaining parent-child (dis)agreement in generic and short stature-specific health-related quality of life reports : do family and social relationships matter?

   1. Quitmann, Julia
   2. Rohenkohl, Anja
   3. Sommer, Rachel
   4. Bullinger, Monika
   5. Silva, Neuza

   2016 - ReposIt - frei zugänglich
10. Wie beurteilen junge Menschen mit disproportioniertem Kleinwuchs ihre Lebensqualität und mit welchen Faktoren ist sie assoziiert?, Living with achondroplasia : how do young persons with disproportional short stature rate their quality of life and which factors are associated with quality of life?

    1. Rohenkohl, Anja C.
    2. Sommer, Rachel
    3. Bestges, Stephanie
    4. Kahrs, Sabine
    5. Klingebiel, Karl-Heinz
    6. Bullinger, Monika
    7. Quitmann, Julia

    2015 - ReposIt
11. Evaluation eines selbsthilfegestützten psychosozialen Interventionsangebotes für Kinder und Jugendliche mit disproportionalem Kleinwuchs : selbsthilfegestützte Intervention für Kinder und Jugendliche mit Kleinwuchs, Evaluation of a self-help supported counseling concept for children and adolescents with disproportional short stature

    1. Rohenkohl, Anja
    2. Sommer, Rachel
    3. Kahrs, S.
    4. Bullinger, Monika
    5. Klingebiel, Katja
    6. Quitmann, Julia H.

    2015 - ReposIt
12. Lebensqualität junger Menschen mit Achondroplasie : qualitativer Vergleich der Perspektiven von Betroffenen und Eltern, Quality of life in young patients with achondroplasia : Qualitative comparison of the perspectives of patients and parents

    1. Quitmann, Julia
    2. Witt, Stefanie
    3. Rohenkohl, Anja
    4. Bullinger, Monika
    5. Sommer, Rachel
    6. Klingebiel, Ruzena
    7. Klingebiel, Karl-Heinz

    2014 - ReposIt
13. Wie erleben betroffene Kinder und Jugendliche ihren Kleinwuchs, und wie ist die Sicht ihrer Eltern?, How do Affected Children and Adolescents Experience their Short Stature, and what is the Point of View of their Parents?

    1. Quitmann, Julia
    2. Rohenkohl, Anja
    3. Sommer, Rachel
    4. Petzold, Sophie
    5. Bullinger-Naber, Monika

    2014 - ReposIt