47 Einträge gefunden

1. An international collaborative initiative to establish a quality-of-life questionnaire for children and adolescents with repair of Esophageal Atresia in 14 countries

   1. Dellenmark Blom, Michaela
   2. Witt, Stefanie
   3. Durkin, Natalie
   4. Eaton, Simon
   5. Galán, Alba Sánchez
   6. Rozensztrauch, Anna
   7. Sabolić, Ivana

   2024 - ReposIt - frei zugänglich
2. A comprehensive systematic review of health-related quality of life measures in short stature paediatric patients

   1. Adedeji, Adekunle
   2. Witt, Stefanie
   3. Innig, Florian
   4. Quitmann, Julia

   2024 - ReposIt - frei zugänglich
3. DySMA : an Instrument to monitor swallowing function in children with spinal muscular atrophy ages 0 to 24 Months ; development, consensus, and pilot testing

   1. Zang, Jana
   2. Witt, Stefanie
   3. Johannsen, Jessika
   4. Weiss, Deike
   5. Denecke, Jonas
   6. Dumitrascu, Charlotte
   7. Nießen, Almut

   2024 - ReposIt - frei zugänglich
4. Development and psychometric evaluation of the IDMUQ : a short measure to assess increased digital media use in preschool children

   1. Wartberg, Lutz
   2. Schmidt, Hannah
   3. Menrath, Ingo
   4. Witt, Stefanie
   5. Pawils, Silke

   2024 - ReposIt - frei zugänglich
5. Growth hormone treatment in children with short stature : impact of the diagnosis on parents

   1. Witt, Stefanie
   2. Bloemeke, Janika
   3. Bullinger, Monika
   4. Dörr, Helmuth Günther
   5. Silva, Neuza
   6. Quitmann, Julia

   2024 - ReposIt
6. Increased digital media use in preschool children : exploring the links with parental stress and their problematic media use

   1. Kattein, Elena
   2. Schmidt, Hannah
   3. Witt, Stefanie
   4. Jörren, Hannah Lea
   5. Menrath, Ingo
   6. Rumpf, Hans-Jürgen
   7. Wartberg, Lutz

   2023 - ReposIt - frei zugänglich
7. Caregiving burden and special needs of parents in the care of their short-statured children : a qualitative approach

   1. Lackner, Lea
   2. Quitmann, Julia Hannah
   3. Witt, Stefanie

   2023 - ReposIt - frei zugänglich
8. Health-related quality of life, stress, caregiving burden and special needs of parents caring for a short-statured child-review and recommendations for future research

   1. Lackner, Lea
   2. Quitmann, Julia
   3. Kristensen, Kaja
   4. Witt, Stefanie

   2023 - ReposIt - frei zugänglich
9. Effect of the addition of a mental health specialist for evaluation of undiagnosed patients in centres for rare diseases (ZSE-DUO) : a prospective, controlled trial with a two-phase cohort design

   1. Hebestreit, Helge
   2. Lapstich, Anne-Marie
   3. Brandstetter, Lilly
   4. Krauth, Christian
   5. Deckert, Jürgen
   6. Haas, Kirsten
   7. Pfister, Lisa

   2023 - ReposIt - frei zugänglich
10. Effects of a pretend play intervention on health-related quality of life in children with cancer : a Swedish-German study

    1. Witt, Stefanie
    2. Quitmann, Julia
    3. Höglund, Anna T.
    4. Russ, Sandra
    5. Kaman, Anne
    6. Escherich, Gabriele
    7. Frygner-Holm, Sara

    2023 - ReposIt - frei zugänglich
11. Living with a rare disease : experiences and needs in pediatric patients and their parents

    1. Witt, Stefanie
    2. Schuett, Katharina
    3. Wiegand-Grefe, Silke
    4. Boettcher, Johannes
    5. Quitmann, Julia

    2023 - ReposIt - frei zugänglich
12. Parent perceptions of a pretend play intervention for their children with cancer

    1. Höglund, Anna T.
    2. Witt, Stefanie
    3. Quitmann, Julia H.
    4. Frygner-Holm, Sara

    2023 - ReposIt - frei zugänglich
13. Bewegungsorientierte Förderung von Lebensqualität in der Kindertagesstätte

    1. Witt, Stefanie
    2. Fiedler, Maieli
    3. Madsen, Lena
    4. Quitmann, Julia

    2023 - ReposIt
14. Herausforderungen beim Übergang in die Elternrolle : Begleitung von werdenden Eltern mit dem Elternkurs "Sicherer Hafen"

    1. Witt, Stefanie
    2. Brandi, Dagmar
    3. Kristensen, Kaja
    4. Kollmeyer, Meike
    5. Quitmann, Julia

    2023 - ReposIt
15. Caring for a child with congenital adrenal hyperplasia diagnosed by newborn screening : parental health-related Quality of Life, coping patterns, and needs

    1. Rautmann, Laura
    2. Witt, Stefanie
    3. Theiding, Christoph André
    4. Odenwald, Birgit
    5. Nennstiel-Ratzel, Uta
    6. Dörr, Helmuth Günther
    7. Quitmann, Julia Hannah

    2023 - ReposIt - frei zugänglich
16. Lebensqualität von kleinwüchsigen Kindern und Jugendlichen und Wachstumshormontherapie, Quality of life of short-statured children and adolescents and growth hormone treatment

    1. Quitmann, Julia Hannah
    2. Binder, Gerhard
    3. Witt, Stefanie
    4. Bullinger, Monika
    5. Blömeke, Janika
    6. Fricke-Otto, Susanne
    7. Hauffa, Berthold

    2023 - ReposIt - frei zugänglich
17. Maßnahmen für einen optimalen Zugang von Kindern mit seltenen Erkrankungen und ihrer Familien zur psychosozialen Versorgung, Measures for optimal access to psychosocial care of children with rare diseases and their families

    1. Witt, Stefanie
    2. Kristensen, Kaja
    3. Wiegand-Grefe, Silke
    4. Quitmann, Julia

    2023 - ReposIt
18. Lebensqualität und erlebte Belastungen von Patient*innen mit Verdacht auf eine Seltene Erkrankung : erste Erkenntnisse aus der ZSE-DUO Studie

    1. Witt, Stefanie
    2. Kristensen, Kaja
    3. Blömeke, Janika
    4. Hebestreit, Helge
    5. Wocker, Maximilian
    6. Pfister, Lisa
    7. Bullinger, Monika

    2022 - ReposIt
19. Factors of family impact in a Swedish-German cohort of children born with esophageal atresia

    1. Dellenmark-Blom, Michaela
    2. Abrahamsson, Kate
    3. Dingemann, Jens
    4. Witt, Stefanie
    5. Dingemann, Carmen
    6. Jönsson, Linus
    7. Gatzinsky, Vladimir

    2022 - ReposIt - frei zugänglich
20. Parent-child-agreement on health-related quality of life and its determinants in patients born with Esophageal Atresia : a Swedish-German cross-sectional study

    1. Witt, Stefanie
    2. Dellenmark-Blom, Michaela
    3. Kuckuck, Susanne
    4. Dingemann, Jens
    5. Abrahamsson, Kate
    6. Dingemann, Carmen
    7. Chaplin, John Eric

    2021 - ReposIt - frei zugänglich