9 Einträge gefunden

1. Lebensqualität von kleinwüchsigen Kindern und Jugendlichen und Wachstumshormontherapie , Quality of life of short-statured children and adolescents and growth hormone treatment

   1. Quitmann, Julia Hannah
   2. Binder, Gerhard
   3. Witt, Stefanie
   4. Bullinger, Monika
   5. Blömeke, Janika
   6. Fricke-Otto, Susanne
   7. Hauffa, Berthold

   2023 - ReposIt - frei zugänglich
2. Lebensqualität und erlebte Belastungen von Patient*innen mit Verdacht auf eine Seltene Erkrankung : erste Erkenntnisse aus der ZSE-DUO Studie

   1. Witt, Stefanie
   2. Kristensen, Kaja
   3. Blömeke, Janika
   4. Hebestreit, Helge
   5. Wocker, Maximilian
   6. Pfister, Lisa
   7. Bullinger, Monika

   2022 - ReposIt
3. Rare pediatric diseases and pathways to psychosocial care : a qualitative interview study with professional experts working with affected families in Germany

   1. Witt, Stefanie
   2. Kristensen, Kaja
   3. Wiegand-Grefe, Silke
   4. Boettcher, Johannes
   5. Blömeke, Janika
   6. Wingartz, Christina
   7. Bullinger, Monika

   2021 - ReposIt - frei zugänglich
4. Patient-reported outcomes : the value of observational assessments

   1. Witt, Stefanie
   2. Blömeke, Janika
   3. Bullinger, Monika
   4. Dingemann, Jens
   5. Dellenmark-Blom, Michaela
   6. Quitmann, Julia

   2021 - ReposIt
5. Health-related quality of life assessment in children and their families : aspects of importance to the pediatric surgeon

   1. Blömeke, Janika
   2. Witt, Stefanie
   3. Bullinger, Monika
   4. Dingemann, Jens
   5. Dellenmark-Blom, Michaela
   6. Quitmann, Julia

   2020 - ReposIt
6. Basic principles of health-related quality of life in parents and caregivers of pediatric surgical patients with rare congenital malformations : a scoping review

   1. Witt, Stefanie
   2. Blömeke, Janika
   3. Bullinger, Monika
   4. Dingemann, Jens
   5. Quitmann, Julia

   2020 - ReposIt
7. Adrenogenitales Syndrom (AGS) mit 21-Hydroxylase-Defekt bei Kleinkindern : erste Ergebnisse einer Pilotstudie zur psychosozialen Situation der Eltern

   1. Witt, Stefanie
   2. Blömeke, Janika
   3. Dörr, Helmuth Günther
   4. Quitmann, Julia

   2018 - ReposIt
8. The psychometric evaluation of the quality of life in short stature youth (QoLISSY) instrument for German children born small for gestational age

   1. Sommer, Rachel
   2. Blömeke, Janika
   3. Bullinger, Monika
   4. Quitmann, Julia

   2018 - ReposIt
9. An ICF-CY-based approach to assessing self- and observer-reported functioning in young persons with achondroplasia : development of the pilot version of the Achondroplasia Personal Life Experience Scale (APLES)

   1. Sommer, Rachel
   2. Blömeke, Janika
   3. Dabs, Michaela
   4. Witt, Stefanie
   5. Bullinger, Monika
   6. Quitmann, Julia

   2016 - ReposIt