20 Einträge gefunden

1. Factors of family impact in a Swedish-German cohort of children born with esophageal atresia

   1. Dellenmark-Blom, Michaela
   2. Abrahamsson, Kate
   3. Dingemann, Jens
   4. Witt, Stefanie
   5. Dingemann, Carmen
   6. Jönsson, Linus
   7. Gatzinsky, Vladimir

   2022 - Forschungsinformationssystem des UKE - frei zugänglich
2. Patient-Reported Outcomes-The Value of Observational Assessments

   1. Witt, Stefanie
   2. Bloemeke, Janika
   3. Bullinger, Monika
   4. Dingemann, Jens
   5. Dellenmark-Blom, Michaela
   6. Quitmann, Julia

   2021 - Forschungsinformationssystem des UKE
3. Rare pediatric diseases and pathways to psychosocial care: a qualitative interview study with professional experts working with affected families in Germany

   1. Witt, Stefanie
   2. Kristensen, Kaja
   3. Wiegand-Grefe, Silke
   4. Boettcher, Johannes
   5. Bloemeke, Janika
   6. Wingartz, Christina
   7. Bullinger, Monika

   2021 - Forschungsinformationssystem des UKE - frei zugänglich
4. Parent-child-agreement on health-related quality of life and its determinants in patients born with Esophageal Atresia: a Swedish-German cross-sectional study

   1. Witt, Stefanie
   2. Dellenmark-Blom, Michaela
   3. Kuckuck, Susanne
   4. Dingemann, Jens
   5. Abrahamsson, Kate
   6. Dingemann, Carmen
   7. Chaplin, John Eric

   2021 - Forschungsinformationssystem des UKE - frei zugänglich
5. Basic Principles of Health-Related Quality of Life in Parents and Caregivers of Pediatric Surgical Patients with Rare Congenital Malformations-A Scoping Review

   1. Witt, Stefanie
   2. Blömeke, Janika
   3. Bullinger, Monika
   4. Dingemann, Jens
   5. Quitmann, Julia

   2020 - Forschungsinformationssystem des UKE
6. Health-Related Quality of Life Assessment in Children and their Families:Aspects of Importance to the Pediatric Surgeon

   1. Bloemeke, Janika
   2. Witt, Stefanie
   3. Bullinger, Monika
   4. Dingemann, Jens
   5. Dellenmark-Blom, Michaela
   6. Quitmann, Julia

   2020 - Forschungsinformationssystem des UKE
7. Clinical Factors Affecting Condition-Specific Quality-of-Life Domains in Pediatric Patients after Repair of Esophageal Atresia: The Swedish-German EA-QOL Study

   1. Dellenmark-Blom, Michaela
   2. Quitmann, Julia
   3. Dingemann, Jens
   4. Witt, Stefanie
   5. Ure, Benno M
   6. Bullinger, Monika
   7. Jönsson, Linus

   2020 - Forschungsinformationssystem des UKE
8. Piloting and psychometric properties of a patient-reported outcome instrument for young people with achondroplasia based on the International Classification of Functioning Disability and Health: the Achondroplasia Personal Life Experience Scale (APLES)

   1. Bloemeke, Janika
   2. Sommer, Rachel
   3. Witt, Stefanie
   4. Dabs, Michaela
   5. Badia, Francisco Javier
   6. Bullinger, Monika
   7. Quitmann, Julia

   2019 - Forschungsinformationssystem des UKE
9. Health-related quality of life experiences in children and adolescents born with esophageal atresia: A Swedish-German focus group study

   1. Witt, Stefanie
   2. Dellenmark-Blom, Michaela
   3. Flieder, Sofie
   4. Dingemann, Jens
   5. Abrahamsson, Kate
   6. Jönsson, Linus
   7. Gatzinsky, Vladimir

   2019 - Forschungsinformationssystem des UKE
10. Cross-cultural selection and validation of instruments to assess patient-reported outcomes in children and adolescents with achondroplasia

    1. Bloemeke, Janika
    2. Sommer, Rachel
    3. Witt, Stefanie
    4. Bullinger, Monika
    5. Nordon, Clementine
    6. Badia, Francisco Javier
    7. González, Felipe Luna

    2019 - Forschungsinformationssystem des UKE
11. Quality of life of children with achondroplasia and their parents - a German cross-sectional study

    1. Witt, Stefanie
    2. Kolb, Beate
    3. Bloemeke, Janika
    4. Mohnike, Klaus
    5. Bullinger, Monika
    6. Quitmann, Julia

    2019 - Forschungsinformationssystem des UKE - frei zugänglich
12. Quality of Life of Short-Statured Children Born Small for Gestational Age or Idiopathic Growth Hormone Deficiency Within 1 Year of Growth Hormone Treatment

    1. Quitmann, Julia Hannah
    2. Bloemeke, Janika
    3. Silva, Neuza
    4. Bullinger, Monika
    5. Witt, Stefanie
    6. Akkurt, Ilker
    7. Dunstheimer, Desiree

    2019 - Forschungsinformationssystem des UKE - frei zugänglich
13. Agreement between mothers', fathers', and children's' ratings on health-related quality of life in children born with esophageal atresia - a German cross-sectional study

    1. Witt, Stefanie
    2. Bloemeke, Janika
    3. Bullinger, Monika
    4. Dingemann, Jens
    5. Dellenmark-Blom, Michaela
    6. Quitmann, Julia

    2019 - Forschungsinformationssystem des UKE - frei zugänglich
14. Psychometric properties of the quality of life in short statured youth (QoLISSY) questionnaire within the course of growth hormone treatment

    1. Bloemeke, Janika
    2. Silva, Neuza
    3. Bullinger, Monika
    4. Witt, Stefanie
    5. Dörr, Helmuth-Günther
    6. Quitmann, Julia

    2019 - Forschungsinformationssystem des UKE - frei zugänglich
15. Generic Health-Related Quality of Life after Repair of Esophageal Atresia and Its Determinants within a German-Swedish Cohort

    1. Flieder, Sofie
    2. Dellenmark-Blom, Michaela
    3. Witt, Stefanie
    4. Dingemann, Carmen
    5. Quitmann, Julia H
    6. Jönsson, Linus
    7. Gatzinsky, Vladimir

    2019 - Forschungsinformationssystem des UKE
16. Emotionsregulation, psychische Auffälligkeiten und Lebensqualität von Kindern mit endokrinem Kleinwuchs

    1. Witt, Stefanie
    2. Bullinger, Monika
    3. Quitmann, Julia Hannah

    2018 - Forschungsinformationssystem des UKE
17. Exploring the potential of a pretend play intervention in young patients with leukemia

    1. Witt, Stefanie
    2. Escherich, Gabriele
    3. Rutkowski, Stefan Josef
    4. Kappelhoff, Gerhard
    5. Frygner-Holm, Sara
    6. Russ, Sandra
    7. Bullinger, Monika

    2018 - Forschungsinformationssystem des UKE
18. Children's psychosocial functioning and parents' quality of life in paediatric short stature: The mediating role of caregiving stress

    1. Silva, Neuza
    2. Bullinger, Monika
    3. Sommer, Rachel
    4. Rohenkohl, Anja
    5. Witt, Stefanie
    6. Quitmann, Julia

    2018 - Forschungsinformationssystem des UKE
19. An ICF-CY-based approach to assessing self- and observer-reported functioning in young persons with achondroplasia - development of the pilot version of the Achondroplasia Personal Life Experience Scale (APLES)

    1. Sommer, Rachel
    2. Blömeke, Janika
    3. Dabs, Michaela
    4. Witt, Stefanie
    5. Bullinger, Monika
    6. Quitmann, Julia

    2017 - Forschungsinformationssystem des UKE
20. Understanding, Assessing and Improving Health-Related Quality of Life of Young People with Achondroplasia- A Collaboration between a Patient Organization and Academic Medicine

    1. Witt, Stefanie
    2. Rohenkohl, Anja
    3. Bullinger, Monika
    4. Sommer, Rachel
    5. Kahrs, Sabine
    6. Klingebiel, Karl-Heinz
    7. Klingebiel, Ruzena

    2017 - Forschungsinformationssystem des UKE