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Einrichtung
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Autor/in
- Quitmann, Julia
- Bullinger, Monika 16
- Witt, Stefanie 16
- Sommer, Rachel 10
- Rohenkohl, Anja 9
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44 Einträge gefunden
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Living with a rare disease - experiences and needs in pediatric patients and their parents
2023 - Forschungsinformationssystem des UKE - frei zugänglich -
Rare pediatric diseases and pathways to psychosocial care: a qualitative interview study with professional experts working with affected families in Germany
- Witt, Stefanie
- Kristensen, Kaja
- Wiegand-Grefe, Silke
- Boettcher, Johannes
- Bloemeke, Janika
- Wingartz, Christina
- Bullinger, Monika
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Parent-Child Assessment of Strengths and Difficulties of German Children and Adolescents Born With Esophageal Atresia
2021 - Forschungsinformationssystem des UKE - frei zugänglich -
Health-Related Quality of Life of Children and Adolescents With Congenital Hyperinsulinism - A Scoping Review
2021 - Forschungsinformationssystem des UKE - frei zugänglich -
Patient-Reported Outcomes-The Value of Observational Assessments
- Witt, Stefanie
- Bloemeke, Janika
- Bullinger, Monika
- Dingemann, Jens
- Dellenmark-Blom, Michaela
- Quitmann, Julia
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Health-Related Quality of Life in Patients after Repair of Esophageal Atresia: A Review of Current Literature
2020 - Forschungsinformationssystem des UKE -
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Health-Related Quality of Life and Psychosocial Morbidity in Anorectal Malformation and Hirschsprung's Disease
2020 - Forschungsinformationssystem des UKE -
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Clinical Factors Affecting Condition-Specific Quality-of-Life Domains in Pediatric Patients after Repair of Esophageal Atresia: The Swedish-German EA-QOL Study
- Dellenmark-Blom, Michaela
- Quitmann, Julia
- Dingemann, Jens
- Witt, Stefanie
- Ure, Benno M
- Bullinger, Monika
- Jönsson, Linus
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Psychometric properties of the quality of life in short statured youth (QoLISSY) questionnaire within the course of growth hormone treatment
- Bloemeke, Janika
- Silva, Neuza
- Bullinger, Monika
- Witt, Stefanie
- Dörr, Helmuth-Günther
- Quitmann, Julia
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Pretend Play as an Intervention for Children With Cancer:A Feasibility Study
- Frygner-Holm, Sara
- Russ, Sandra
- Quitmann, Julia
- Ring, Lena
- Zyga, Olena
- Hansson, Mats
- Ljungman, Gustaf
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Psychometric performance of the Quality of Life in Short Stature Youth (QoLISSY) questionnaire in a randomized open-label comparator trial in idiopathic short stature
- Bloemeke, Janika
- Balacano Valdez, Richelle
- Mauras, Nelly
- Mericq, Veronica
- Ross, Judith
- Permuy, Joseph
- Quitmann, Julia
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Agreement between mothers', fathers', and children's' ratings on health-related quality of life in children born with esophageal atresia - a German cross-sectional study
- Witt, Stefanie
- Bloemeke, Janika
- Bullinger, Monika
- Dingemann, Jens
- Dellenmark-Blom, Michaela
- Quitmann, Julia
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Quality of life of children with achondroplasia and their parents - a German cross-sectional study
2019 - Forschungsinformationssystem des UKE - frei zugänglich -
Piloting and psychometric properties of a patient-reported outcome instrument for young people with achondroplasia based on the International Classification of Functioning Disability and Health: the Achondroplasia Personal Life Experience Scale (APLES)
- Bloemeke, Janika
- Sommer, Rachel
- Witt, Stefanie
- Dabs, Michaela
- Badia, Francisco Javier
- Bullinger, Monika
- Quitmann, Julia
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Development and psychometric evaluation of the metabQoL 1.0: A quality of life questionnaire for paediatric patients with intoxication-type inborn errors of metabolism
2017 - Forschungsinformationssystem der UHH -
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Validation of the Italian Quality of Life in Short Stature Youth (QoLISSY) questionnaire
2017 - Forschungsinformationssystem der UHH