8 Einträge gefunden

1. Rare pediatric diseases and pathways to psychosocial care: a qualitative interview study with professional experts working with affected families in Germany

   1. Witt, Stefanie
   2. Kristensen, Kaja
   3. Wiegand-Grefe, Silke
   4. Boettcher, Johannes
   5. Bloemeke, Janika
   6. Wingartz, Christina
   7. Bullinger, Monika

   2021 - Forschungsinformationssystem des UKE - frei zugänglich
2. Patient-Reported Outcomes-The Value of Observational Assessments

   1. Witt, Stefanie
   2. Bloemeke, Janika
   3. Bullinger, Monika
   4. Dingemann, Jens
   5. Dellenmark-Blom, Michaela
   6. Quitmann, Julia

   2021 - Forschungsinformationssystem des UKE
3. Health-Related Quality of Life Assessment in Children and their Families:Aspects of Importance to the Pediatric Surgeon

   1. Bloemeke, Janika
   2. Witt, Stefanie
   3. Bullinger, Monika
   4. Dingemann, Jens
   5. Dellenmark-Blom, Michaela
   6. Quitmann, Julia

   2020 - Forschungsinformationssystem des UKE
4. Quality of life of children with achondroplasia and their parents - a German cross-sectional study

   1. Witt, Stefanie
   2. Kolb, Beate
   3. Bloemeke, Janika
   4. Mohnike, Klaus
   5. Bullinger, Monika
   6. Quitmann, Julia

   2019 - Forschungsinformationssystem des UKE - frei zugänglich
5. Psychometric properties of the quality of life in short statured youth (QoLISSY) questionnaire within the course of growth hormone treatment

   1. Bloemeke, Janika
   2. Silva, Neuza
   3. Bullinger, Monika
   4. Witt, Stefanie
   5. Dörr, Helmuth-Günther
   6. Quitmann, Julia

   2019 - Forschungsinformationssystem des UKE - frei zugänglich
6. Piloting and psychometric properties of a patient-reported outcome instrument for young people with achondroplasia based on the International Classification of Functioning Disability and Health: the Achondroplasia Personal Life Experience Scale (APLES)

   1. Bloemeke, Janika
   2. Sommer, Rachel
   3. Witt, Stefanie
   4. Dabs, Michaela
   5. Badia, Francisco Javier
   6. Bullinger, Monika
   7. Quitmann, Julia

   2019 - Forschungsinformationssystem des UKE
7. Agreement between mothers', fathers', and children's' ratings on health-related quality of life in children born with esophageal atresia - a German cross-sectional study

   1. Witt, Stefanie
   2. Bloemeke, Janika
   3. Bullinger, Monika
   4. Dingemann, Jens
   5. Dellenmark-Blom, Michaela
   6. Quitmann, Julia

   2019 - Forschungsinformationssystem des UKE - frei zugänglich
8. Psychometric performance of the Quality of Life in Short Stature Youth (QoLISSY) questionnaire in a randomized open-label comparator trial in idiopathic short stature

   1. Bloemeke, Janika
   2. Balacano Valdez, Richelle
   3. Mauras, Nelly
   4. Mericq, Veronica
   5. Ross, Judith
   6. Permuy, Joseph
   7. Quitmann, Julia

   2019 - Forschungsinformationssystem des UKE