16 Einträge gefunden

1. Living with a rare disease - experiences and needs in pediatric patients and their parents

   1. Witt, Stefanie
   2. Schuett, Katharina
   3. Wiegand-Grefe, Silke
   4. Boettcher, Johannes
   5. Quitmann, Julia

   2023 - Forschungsinformationssystem des UKE - frei zugänglich
2. Rare pediatric diseases and pathways to psychosocial care: a qualitative interview study with professional experts working with affected families in Germany

   1. Witt, Stefanie
   2. Kristensen, Kaja
   3. Wiegand-Grefe, Silke
   4. Boettcher, Johannes
   5. Bloemeke, Janika
   6. Wingartz, Christina
   7. Bullinger, Monika

   2021 - Forschungsinformationssystem des UKE - frei zugänglich
3. Parent-Child Assessment of Strengths and Difficulties of German Children and Adolescents Born With Esophageal Atresia

   1. Witt, Stefanie
   2. Dingemann, Jens
   3. Dellenmark-Blom, Michaela
   4. Quitmann, Julia

   2021 - Forschungsinformationssystem des UKE - frei zugänglich
4. Patient-Reported Outcomes-The Value of Observational Assessments

   1. Witt, Stefanie
   2. Bloemeke, Janika
   3. Bullinger, Monika
   4. Dingemann, Jens
   5. Dellenmark-Blom, Michaela
   6. Quitmann, Julia

   2021 - Forschungsinformationssystem des UKE
5. Health-Related Quality of Life of Children and Adolescents With Congenital Hyperinsulinism - A Scoping Review

   1. Kristensen, Kaja
   2. Quitmann, Julia
   3. Witt, Stefanie

   2021 - Forschungsinformationssystem des UKE - frei zugänglich
6. Basic Principles of Health-Related Quality of Life in Parents and Caregivers of Pediatric Surgical Patients with Rare Congenital Malformations-A Scoping Review

   1. Witt, Stefanie
   2. Blömeke, Janika
   3. Bullinger, Monika
   4. Dingemann, Jens
   5. Quitmann, Julia

   2020 - Forschungsinformationssystem des UKE
7. Clinical Factors Affecting Condition-Specific Quality-of-Life Domains in Pediatric Patients after Repair of Esophageal Atresia: The Swedish-German EA-QOL Study

   1. Dellenmark-Blom, Michaela
   2. Quitmann, Julia
   3. Dingemann, Jens
   4. Witt, Stefanie
   5. Ure, Benno M
   6. Bullinger, Monika
   7. Jönsson, Linus

   2020 - Forschungsinformationssystem des UKE
8. Health-Related Quality of Life Assessment in Children and their Families:Aspects of Importance to the Pediatric Surgeon

   1. Bloemeke, Janika
   2. Witt, Stefanie
   3. Bullinger, Monika
   4. Dingemann, Jens
   5. Dellenmark-Blom, Michaela
   6. Quitmann, Julia

   2020 - Forschungsinformationssystem des UKE
9. Health-Related Quality of Life and Psychosocial Morbidity in Anorectal Malformation and Hirschsprung's Disease

   1. Feng, Xiaoyan
   2. Lacher, Martin
   3. Quitmann, Julia
   4. Witt, Stefanie
   5. Witvliet, Marieke J
   6. Mayer, Steffi

   2020 - Forschungsinformationssystem des UKE
10. Agreement between mothers', fathers', and children's' ratings on health-related quality of life in children born with esophageal atresia - a German cross-sectional study

    1. Witt, Stefanie
    2. Bloemeke, Janika
    3. Bullinger, Monika
    4. Dingemann, Jens
    5. Dellenmark-Blom, Michaela
    6. Quitmann, Julia

    2019 - Forschungsinformationssystem des UKE - frei zugänglich
11. Piloting and psychometric properties of a patient-reported outcome instrument for young people with achondroplasia based on the International Classification of Functioning Disability and Health: the Achondroplasia Personal Life Experience Scale (APLES)

    1. Bloemeke, Janika
    2. Sommer, Rachel
    3. Witt, Stefanie
    4. Dabs, Michaela
    5. Badia, Francisco Javier
    6. Bullinger, Monika
    7. Quitmann, Julia

    2019 - Forschungsinformationssystem des UKE
12. Quality of life of children with achondroplasia and their parents - a German cross-sectional study

    1. Witt, Stefanie
    2. Kolb, Beate
    3. Bloemeke, Janika
    4. Mohnike, Klaus
    5. Bullinger, Monika
    6. Quitmann, Julia

    2019 - Forschungsinformationssystem des UKE - frei zugänglich
13. Psychometric properties of the quality of life in short statured youth (QoLISSY) questionnaire within the course of growth hormone treatment

    1. Bloemeke, Janika
    2. Silva, Neuza
    3. Bullinger, Monika
    4. Witt, Stefanie
    5. Dörr, Helmuth-Günther
    6. Quitmann, Julia

    2019 - Forschungsinformationssystem des UKE - frei zugänglich
14. Children's psychosocial functioning and parents' quality of life in paediatric short stature: The mediating role of caregiving stress

    1. Silva, Neuza
    2. Bullinger, Monika
    3. Sommer, Rachel
    4. Rohenkohl, Anja
    5. Witt, Stefanie
    6. Quitmann, Julia

    2018 - Forschungsinformationssystem des UKE
15. Understanding, Assessing and Improving Health-Related Quality of Life of Young People with Achondroplasia- A Collaboration between a Patient Organization and Academic Medicine

    1. Witt, Stefanie
    2. Rohenkohl, Anja
    3. Bullinger, Monika
    4. Sommer, Rachel
    5. Kahrs, Sabine
    6. Klingebiel, Karl-Heinz
    7. Klingebiel, Ruzena

    2017 - Forschungsinformationssystem des UKE
16. An ICF-CY-based approach to assessing self- and observer-reported functioning in young persons with achondroplasia - development of the pilot version of the Achondroplasia Personal Life Experience Scale (APLES)

    1. Sommer, Rachel
    2. Blömeke, Janika
    3. Dabs, Michaela
    4. Witt, Stefanie
    5. Bullinger, Monika
    6. Quitmann, Julia

    2017 - Forschungsinformationssystem des UKE