9 Einträge gefunden

1. Rare pediatric diseases and pathways to psychosocial care: a qualitative interview study with professional experts working with affected families in Germany

   1. Witt, Stefanie
   2. Kristensen, Kaja
   3. Wiegand-Grefe, Silke
   4. Boettcher, Johannes
   5. Bloemeke, Janika
   6. Wingartz, Christina
   7. Bullinger, Monika

   2021 - Forschungsinformationssystem des UKE - frei zugänglich
2. Patient-Reported Outcomes-The Value of Observational Assessments

   1. Witt, Stefanie
   2. Bloemeke, Janika
   3. Bullinger, Monika
   4. Dingemann, Jens
   5. Dellenmark-Blom, Michaela
   6. Quitmann, Julia

   2021 - Forschungsinformationssystem des UKE
3. Health-Related Quality of Life Assessment in Children and their Families:Aspects of Importance to the Pediatric Surgeon

   1. Bloemeke, Janika
   2. Witt, Stefanie
   3. Bullinger, Monika
   4. Dingemann, Jens
   5. Dellenmark-Blom, Michaela
   6. Quitmann, Julia

   2020 - Forschungsinformationssystem des UKE
4. Agreement between mothers', fathers', and children's' ratings on health-related quality of life in children born with esophageal atresia - a German cross-sectional study

   1. Witt, Stefanie
   2. Bloemeke, Janika
   3. Bullinger, Monika
   4. Dingemann, Jens
   5. Dellenmark-Blom, Michaela
   6. Quitmann, Julia

   2019 - Forschungsinformationssystem des UKE - frei zugänglich
5. Piloting and psychometric properties of a patient-reported outcome instrument for young people with achondroplasia based on the International Classification of Functioning Disability and Health: the Achondroplasia Personal Life Experience Scale (APLES)

   1. Bloemeke, Janika
   2. Sommer, Rachel
   3. Witt, Stefanie
   4. Dabs, Michaela
   5. Badia, Francisco Javier
   6. Bullinger, Monika
   7. Quitmann, Julia

   2019 - Forschungsinformationssystem des UKE
6. Quality of life of children with achondroplasia and their parents - a German cross-sectional study

   1. Witt, Stefanie
   2. Kolb, Beate
   3. Bloemeke, Janika
   4. Mohnike, Klaus
   5. Bullinger, Monika
   6. Quitmann, Julia

   2019 - Forschungsinformationssystem des UKE - frei zugänglich
7. Psychometric properties of the quality of life in short statured youth (QoLISSY) questionnaire within the course of growth hormone treatment

   1. Bloemeke, Janika
   2. Silva, Neuza
   3. Bullinger, Monika
   4. Witt, Stefanie
   5. Dörr, Helmuth-Günther
   6. Quitmann, Julia

   2019 - Forschungsinformationssystem des UKE - frei zugänglich
8. Cross-cultural selection and validation of instruments to assess patient-reported outcomes in children and adolescents with achondroplasia

   1. Bloemeke, Janika
   2. Sommer, Rachel
   3. Witt, Stefanie
   4. Bullinger, Monika
   5. Nordon, Clementine
   6. Badia, Francisco Javier
   7. González, Felipe Luna

   2019 - Forschungsinformationssystem des UKE
9. Quality of Life of Short-Statured Children Born Small for Gestational Age or Idiopathic Growth Hormone Deficiency Within 1 Year of Growth Hormone Treatment

   1. Quitmann, Julia Hannah
   2. Bloemeke, Janika
   3. Silva, Neuza
   4. Bullinger, Monika
   5. Witt, Stefanie
   6. Akkurt, Ilker
   7. Dunstheimer, Desiree

   2019 - Forschungsinformationssystem des UKE - frei zugänglich