7 Einträge gefunden

1. Living with a rare disease - experiences and needs in pediatric patients and their parents

   1. Witt, Stefanie
   2. Schuett, Katharina
   3. Wiegand-Grefe, Silke
   4. Boettcher, Johannes
   5. Quitmann, Julia

   2023 - Forschungsinformationssystem des UKE - frei zugänglich
2. Mental Health of Siblings of Children with Rare Congenital Surgical Diseases during the COVID-19 Pandemic

   1. Boettcher, Johannes
   2. Nazarian, Rojin
   3. Fuerboeter, Mareike
   4. Liedtke, Anna
   5. Wiegand-Grefe, Silke
   6. Reinshagen, Konrad
   7. Boettcher, Michael

   2022 - Forschungsinformationssystem des UKE
3. Rare pediatric diseases and pathways to psychosocial care: a qualitative interview study with professional experts working with affected families in Germany

   1. Witt, Stefanie
   2. Kristensen, Kaja
   3. Wiegand-Grefe, Silke
   4. Boettcher, Johannes
   5. Bloemeke, Janika
   6. Wingartz, Christina
   7. Bullinger, Monika

   2021 - Forschungsinformationssystem des UKE - frei zugänglich
4. Being the Pillar for Children with Rare Diseases-A Systematic Review on Parental Quality of Life

   1. Boettcher, Johannes
   2. Boettcher, Michael
   3. Wiegand-Grefe, Silke
   4. Zapf, Holger

   2021 - Forschungsinformationssystem des UKE - frei zugänglich
5. Quality of life and mental health of children with rare congenital surgical diseases and their parents during the COVID-19 pandemic

   1. Fuerboeter, Mareike
   2. Boettcher, Johannes
   3. Barkmann, Claus
   4. Zapf, Holger
   5. Nazarian, Rojin
   6. Wiegand-Grefe, Silke
   7. Reinshagen, Konrad

   2021 - Forschungsinformationssystem des UKE - frei zugänglich
6. Perceived mental health in parents of children with rare congenital surgical diseases: a double ABCX model considering gender

   1. Boettcher, Johannes
   2. Zapf, Holger
   3. Fuerboeter, Mareike
   4. Nazarian, Rojin
   5. Reinshagen, Konrad
   6. Wiegand-Grefe, Silke
   7. Boettcher, Michael

   2021 - Forschungsinformationssystem des UKE - frei zugänglich
7. Quality of Life and Mental Health in Mothers and Fathers Caring for Children and Adolescents with Rare Diseases Requiring Long-Term Mechanical Ventilation

   1. Boettcher, Johannes
   2. Denecke, Jonas
   3. Barkmann, Claus
   4. Wiegand-Grefe, Silke

   2020 - Forschungsinformationssystem des UKE