5 Einträge gefunden

1. Impact of the COVID-19 pandemic on health care and daily life of patients with rare diseases from the perspective of patient organizations - a qualitative interview study

   1. Zybarth, David
   2. Brandt, Maja
   3. Mundlos, Christine
   4. Inhestern, Laura

   2023 - Forschungsinformationssystem des UKE - frei zugänglich
2. Experiences of Health Care and Psychosocial Needs in Parents of Children with Spinal Muscular Atrophy

   1. Inhestern, Laura
   2. Brandt, Maja
   3. Driemeyer, Joenna
   4. Denecke, Jonas
   5. Johannsen, Jessika
   6. Bergelt, Corinna

   2023 - Forschungsinformationssystem des UKE - frei zugänglich
3. Parents as informal caregivers of children and adolescents with spinal muscular atrophy: a systematic review of quantitative and qualitative data on the psychosocial situation, caregiver burden, and family needs

   1. Brandt, Maja
   2. Johannsen, Lene
   3. Inhestern, Laura
   4. Bergelt, Corinna

   2022 - Forschungsinformationssystem des UKE - frei zugänglich
4. The impact of cancer on the mental health of patients parenting minor children: A systematic review of the quantitative evidence

   1. Johannsen, Lene Marie
   2. Brandt, Maja
   3. Frerichs, Wiebke
   4. Inhestern, Laura
   5. Bergelt, Corinna

   2022 - Forschungsinformationssystem des UKE - frei zugänglich
5. Interface management concepts in healthcare for rare diseases in Germany:a study protocol for a mixed-methods study to develop best practice recommendations

   1. Inhestern, Laura
   2. Zybarth, David
   3. Otto, Ramona
   4. Brandt, Maja
   5. Härter, Martin
   6. Bergelt, Corinna

   2020 - Forschungsinformationssystem des UKE