21 Einträge gefunden

1. Health-related quality of life in haemophilia patients with inhibitors and their caregivers.

   1. Dekoven, M
   2. Wisniewski, T
   3. Petrilla, A
   4. Holot, N
   5. Lee, W C
   6. Cooper, D L
   7. Mackensen von, Sylvia

   2013 - Forschungsinformationssystem des UKE
2. Haemophilia & Exercise Project (HEP): the impact of 1-year sports therapy programme on physical performance in adult haemophilia patients.

   1. Czepa, D
   2. Mackensen von, Sylvia
   3. Hilberg, T

   2013 - Forschungsinformationssystem des UKE
3. Cross-cultural adaptation and linguistic validation of age-group-specific haemophilia patient-reported outcome (PRO) instruments for patients and parents.

   1. Mackensen von, Sylvia
   2. Campos, I G
   3. Acquadro, C
   4. Strandberg-Larsen, M

   2013 - Forschungsinformationssystem des UKE
4. The impact of sport on children with haemophilia.

   1. Khair, K
   2. Littley, A
   3. Will, A
   4. Mackensen von, Sylvia

   2012 - Forschungsinformationssystem des UKE
5. Haemophilia & Exercise Project (HEP): subjective and objective physical performance in adult haemophilia patients--results of a cross-sectional study.

   1. Czepa, D
   2. Mackensen von, Sylvia
   3. Hilberg, T

   2012 - Forschungsinformationssystem des UKE
6. The impact of a specific aqua-training for adult haemophilic patients--results of the WATERCISE study (WAT-QoL).

   1. Mackensen von, Sylvia
   2. Eifrig, Barbara
   3. Zäch, D
   4. Kalnins, J
   5. Wieloch, A
   6. Zeller, W

   2012 - Forschungsinformationssystem des UKE
7. Linking quality-of-life measures using the International Classification of Functioning, Disability and Health and the International Classification of Functioning, Disability and Health-Children and Youth Version in chronic health conditions: the example of young people with hemophilia.

   1. Krasuska, Marta
   2. Riva, Silvia
   3. Fava, Leonardo
   4. Mackensen von, Sylvia
   5. Bullinger, Monika

   2012 - Forschungsinformationssystem des UKE
8. A new tool for the assessment of satisfaction with iron chelation therapy (ICT-Sat) for patients with β-thalassemia major.

   1. Elalfy, Mohsen S
   2. Massoud, Walid
   3. Elsherif, Nayera H
   4. Labib, Jonair H
   5. Elalfy, Omar M
   6. Elaasar, Safaa
   7. Mackensen von, Sylvia

   2012 - Forschungsinformationssystem des UKE
9. Health-related quality of life and psychological well-being in elderly patients with haemophilia.

   1. Mackensen von, Sylvia
   2. Gringeri, A
   3. Siboni, S M
   4. Mannucci, P M
   5. Centres, Italian Association Of Haemophilia

   2012 - Forschungsinformationssystem des UKE
10. Quality of life in adult patients with haemophilia--a single centre experience from Sweden.

    1. Lindvall, K
    2. Mackensen von, Sylvia
    3. Berntorp, E

    2012 - Forschungsinformationssystem des UKE
11. Haemophilia care in Europe: the ESCHQoL study.

    1. Schramm, W
    2. Gringeri, A
    3. Ljung, R
    4. Berger, K
    5. Crispin, A
    6. Bullinger, Monika
    7. Giangrande, P L F

    2012 - Forschungsinformationssystem des UKE
12. Why should we care about quality of life in persons with haemophilia?

    1. Aledort, L
    2. Bullinger, Monika
    3. Mackensen von, Sylvia
    4. Wasserman, J
    5. Young, N L
    6. Globe, D
    7. Group, Health Related Quality Of Life Expert Working Group Of The International Prophylaxis Study

    2012 - Forschungsinformationssystem des UKE
13. Health-related quality of life in children and adolescents with stroke, self-reports, and parent/proxies reports: cross-sectional investigation.

    1. Neuner, Bruno
    2. Mackensen von, Sylvia
    3. Krümpel, Anne
    4. Manner, Daniela
    5. Friefeld, Sharon
    6. Nixdorf, Sarah
    7. Frühwald, Michael

    2011 - Forschungsinformationssystem des UKE
14. Bone density and health-related quality of life in adult patients with severe haemophilia.

    1. Khawaji, M
    2. Astermark, J
    3. Mackensen von, Sylvia
    4. Akesson, K
    5. Berntorp, E

    2011 - Forschungsinformationssystem des UKE
15. Quality of life in women with bleeding disorders.

    1. Mackensen von, Sylvia

    2011 - Forschungsinformationssystem des UKE
16. A randomized clinical trial of prophylaxis in children with hemophilia A (the ESPRIT Study).

    1. Gringeri, A
    2. Lundin, B
    3. Mackensen von, Sylvia
    4. Mantovani, L
    5. Mannucci, P M
    6. Group, ESPRIT Study

    2011 - Forschungsinformationssystem des UKE
17. Pharmacotherapy of haemophilia A.

    1. Gringeri, Alessandro
    2. Muça-Perja, Myrvet
    3. Mangiafico, Lucia
    4. Mackensen von, Sylvia

    2011 - Forschungsinformationssystem des UKE
18. Development and validation of a new questionnaire for the assessment of subjective physical performance in adult patients with haemophilia--the HEP-Test-Q.

    1. Mackensen von, Sylvia
    2. Czepa, D
    3. Herbsleb, M
    4. Hilberg, T

    2010 - Forschungsinformationssystem des UKE
19. Content comparison of haemophilia specific patient-rated outcome measures with the international classification of functioning, disability and health (ICF, ICF-CY).

    1. Riva, Silvia
    2. Bullinger, Monika
    3. Amann, Edda
    4. Mackensen von, Sylvia

    2010 - Forschungsinformationssystem des UKE - frei zugänglich
20. The impact of menstrual disorders on quality of life in women with inherited bleeding disorders.

    1. Kadir, R A
    2. Edlund, M
    3. Mackensen von, Sylvia

    2010 - Forschungsinformationssystem des UKE