10 Einträge gefunden

1. Piloting and psychometric properties of a patient-reported outcome instrument for young people with achondroplasia based on the International Classification of Functioning Disability and Health: the Achondroplasia Personal Life Experience Scale (APLES)

   1. Bloemeke, Janika
   2. Sommer, Rachel
   3. Witt, Stefanie
   4. Dabs, Michaela
   5. Badia, Francisco Javier
   6. Bullinger, Monika
   7. Quitmann, Julia

   2019 - Forschungsinformationssystem des UKE
2. Cross-cultural selection and validation of instruments to assess patient-reported outcomes in children and adolescents with achondroplasia

   1. Bloemeke, Janika
   2. Sommer, Rachel
   3. Witt, Stefanie
   4. Bullinger, Monika
   5. Nordon, Clementine
   6. Badia, Francisco Javier
   7. González, Felipe Luna

   2019 - Forschungsinformationssystem des UKE
3. Children's psychosocial functioning and parents' quality of life in paediatric short stature: The mediating role of caregiving stress

   1. Silva, Neuza
   2. Bullinger, Monika
   3. Sommer, Rachel
   4. Rohenkohl, Anja
   5. Witt, Stefanie
   6. Quitmann, Julia

   2018 - Forschungsinformationssystem des UKE
4. An ICF-CY-based approach to assessing self- and observer-reported functioning in young persons with achondroplasia - development of the pilot version of the Achondroplasia Personal Life Experience Scale (APLES)

   1. Sommer, Rachel
   2. Blömeke, Janika
   3. Dabs, Michaela
   4. Witt, Stefanie
   5. Bullinger, Monika
   6. Quitmann, Julia

   2017 - Forschungsinformationssystem des UKE
5. Understanding, Assessing and Improving Health-Related Quality of Life of Young People with Achondroplasia- A Collaboration between a Patient Organization and Academic Medicine

   1. Witt, Stefanie
   2. Rohenkohl, Anja
   3. Bullinger, Monika
   4. Sommer, Rachel
   5. Kahrs, Sabine
   6. Klingebiel, Karl-Heinz
   7. Klingebiel, Ruzena

   2017 - Forschungsinformationssystem des UKE
6. Experiencing health-related quality of life in paediatric short stature - a cross-cultural analysis of statements from patients and parents

   1. Sommer, Rachel
   2. Bullinger, Monika
   3. Chaplin, John
   4. Do, Ju-Ky
   5. Power, Mick
   6. Pleil, Andreas
   7. Quitmann, Julia

   2017 - Forschungsinformationssystem des UKE
7. Explaining parent-child (dis)agreement in generic and short stature-specific health-related quality of life reports: do family and social relationships matter?

   1. Quitmann, Julia
   2. Rohenkohl, Anja
   3. Sommer, Rachel
   4. Bullinger, Monika
   5. Silva, Neuza

   2016 - Forschungsinformationssystem des UKE - frei zugänglich
8. Associations between Psychological Problems and Quality of Life in Pediatric Short Stature from Patients' and Parents' Perspectives

   1. Quitmann, Julia Hannah
   2. Bullinger, Monika
   3. Sommer, Rachel
   4. Rohenkohl, Anja
   5. Bernadino Da Silva, Neuza

   2016 - Forschungsinformationssystem des UKE
9. Talking about Height and Quality of Life: A Content - Analysis of Focus Group Discussions with Short - Statured Children and Their Parents in the US

   1. Sommer, Rachel
   2. Bullinger, Monika
   3. Pleil, Andreas
   4. Mauras, Nelly
   5. Ross, Judith
   6. Newfield, Ron
   7. Fox, Janet

   2016 - Forschungsinformationssystem des UKE - frei zugänglich
10. Evaluation of the American-English Quality of Life in Short Stature Youth (QoLISSY) questionnaire in the United States

    1. Bullinger, Monika
    2. Sommer, Rachel
    3. Pleil, Andreas
    4. Mauras, Nelly
    5. Ross, Judith
    6. Newfield, Ron
    7. Silverman, Lawrence

    2015 - Forschungsinformationssystem des UKE - frei zugänglich